This is a list of symptoms and effects of sarcoidosis that have personally happened to me. As I remember them, I update.
- There is scar tissue in my lungs and around my heart.
- Reduced lung capacity.
- There are concerns about pulmonary heart failure much further down the line.
- My chest has a lot of shadows in it which is caused by lymph nodes
- My left knee swells up periodically
- I have had a cold for 11 months
- My body used to be riddled with lumps or granulomas. I have had them in my neck, face, back, bum cheeks, things, legs, arms, fingers, and I think I had at the back of my head. These lumps have sometimes caused problems with walking or sleeping.
- A reappearing and disappearing cough
- Joint pain in fingers and feet
- I got a moon face from the steroids, my whole body seemed to bloat with water retention so at the time I was on steroids I put on almost 2 stone
- Before I went on steroids I dropped to 6.5 stone but looked skinnier than that
- Since finishing steroids my weight leveledlled at just under 7.5 stone
- I had uveitus (this was how they discovered I had the disease) and my vision was significantly reduced for a number of months. I had to take steroid eye drops for almost 6 months and my sight has never been the same again.
- I have red marks on my face (quite small and look like bruises) which I've had for almost 3 years
- My skin goes through periods of immense dryness but has settled down since I started acupuncture and kinesiology and stopped steroids
- Used to be very short of breath and still am slightly short of breath
- My spleen became grossly enlarged which was one of the main triggers of the doctors saying that I had to go on steroids
- I have become intolerant to some foods such as white bread, chicken and pork. I became intolerant to nuts for a while and had a violent reaction to them in June 2005
- Had a couple of bad panic attacks in 2004
- Had to stop putting chemicals on my hair as my hair became weak whilst on steroids
- Teeth became deficient
- Kidneys and bladder play up occasionally
- Can't touch my face near my ears as there are subtle sores
- Fingers are still puffy and swollen despite being off steroids for almost a year
- I get flutters in my chest
- Temporary coughs
- Had a tickly cough for several months which had me clearing my throat constantly
- Lethargy
- Malaise
- Night sweats
- Sudden stomach aches
- Migraines
- Headaches
- A sudden aversion to the contraceptive pill
- Tightness in my chest
- Anxiety
- Mood swings
- Eye pain
- Rash all over torso and thighs (think it's called pruritus rosa)
- Sluggishness
- Memory loss with particular respect to short term
- Kept waking up as it felt like I was stopping breathing
- Lightness in bones due to steroid use so balance went to pot
- Purple skin patches
- Raised bubbled lumps below knee and on face
- Persistent sore throat
Last update July 6th 2006
